Pain when I move
Pain when I don't
Pain when I stop
and Pain when I won't
my Pain you can't see
my Pain you can't feel
my Pain hurts me
my RSD is real
X-ray's don't show anything broken.
MRI's don't show any ligament damage. I have pain though, LOTS OF PAIN.
Extreme in every way. This pain caused me to go from walking around
like a healthy human being, to bedridden in almost 9 months. As of Aug. 20, 2007, I had a spinal
cord stimulator implanted into my back, and it provides enough relief so that I am able to give up to two hours of my time without extreme pain. That to me is an accomplishment.
Here are a couple of excerpts from sites dedicated to providing information for people suffering, including families and friends of those afflicted:
www.RSDS.org - The Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA) is a national not-for-profit organization, headquartered in Milford, Connecticut, that promotes greater public and professional awareness of CRPS, a painful neurological syndrome that may affect more than 1.5 million Americans.
We also fund research fellowships and evidence reports on CRPS. We educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers, on the disabling pain it causes. We encourage individuals with CRPS to offer each other emotional support within affiliate groups. And finally, we are committed to raising funds for research into the cause and cure of CRPS.
www.RSDHope.org - The American RSDHope Organization is a non-profit organization dedicated to increasing awareness of RSDS/CRPS. Excellent informational website for those dealing with Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome. Includes description of RSD/CRPS, Signs, Symptoms, Etiology, Treatments, Facts, Latest Medical Articles, Coping with Pain Articles, RSD videos, Brochures, information on Ketamine Treatment, Physical Therapy, and Support Groups, etc., as well as raises funds for RSD Research . Over 1.1 Million Hits in 2007!
