Afflicted With RSD/CRPS
Invisible Pain is Real Pain
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Additional Support
Here are a few sites for more information, please keep in mind that this is not even close to everything I have in my bookmarks folder, and other forums boards I belong to. I have provided the actual links, instead of hyperlinking them, only because if you just want to write them down and go visit them later, then they are available to you.

Many more can be found on my forum.

http://RSDS.org = founded in 1984

http://RSDHope.org = offers great information on what to tell family and friends, when you don't have the words.

http://www.rsdfoundation.org/ = this one is International based in Australia

www.painfoundation.org = become an advocate - maybe if we all join they will change their name to the Worldwide Pain Foundation :)

http://www2.rpa.net/~lrandall/painscale.html = tips for making your own pain scale, cause we all know how well "rate your pain on a 1-10" works

http://www.ninds.nih.gov/news_and_events/news_articles/news_article_crps.htm

http://neurotalk.psychcentral.com
That one has a myriad of conditions

http://members.tripod.com/~Barefoot_Lass/index-4.html = just for fun

http://www.painreliefnetwork.org

http://crpsrsd.myfastforum.org = another international one (UK) but they welcome all

http://www.rsdsupport.com/ = I have just recently joined this group and I have been more than welcomed :)

http://www.butyoudontlooksick.com= "But you don't look sick"

https://www.reliefinsite.com = Online pain management diary.
While these are better organized on my blog and my forum, I still wanted to offer them on a page on here.

I wanted to make this page to make you, my reader, aware of ALL the support options out there for you.

There will be some forums that you post on that you don't feel truly help you, THAT IS O.K. So many people are out there getting the word out about RSD/CRPS and you can always search for another group.

Find one that truly helps YOU. It sounds selfish, but it's your pain, it's your life - FEEL COMFORTABLE, FEEL SECURE - because you will get personal.
Here are a few Personal Stories. If you find more, or have one yourself, please email me and I will put them in here. Of course, my personal story is in my blog. Just click on this sentence.

http://melsreallifedrama.blogspot.com/ "...a simple slip down a ramp, where I got my right leg stuck underneath me whilst sliding to the bottom and over a concrete step."

http://www.news.com.au/heraldsun/story/0,21985,23370587-2862,00.html Hopes and Heroes "For months Tim has battled a condition called complex regional pain syndrome."

It is here that I am placing lawsuits won/settled which deal with Complex Regional Pain Syndrome, aka, Reflex Sympathetic Dystrophy. The reason for this is to show you that even the courts acknowledge your pains as being real. Also, if you have an Attorney, you can take from these links and give the information to your lawyer.

1. Settlement Reached

2. More to come...stay tuned...
Copyright . Christine. All rights reserved.

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