Afflicted With RSD/CRPS
Invisible Pain is Real Pain
Invisible Pain is Real Pain
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About Us
I was diagnosed in 2007 with Reflex Sympathetic Dystrophy (RSD), aka, Complex Regional Pain Syndrome (CRPS). This came as a result of an accident with a manhole and its cover December 2, 2006, my birthday of all days. I have had extensive and aggressive treatment and am still pushing to get better. While I may not be able to do everything I once used to do, I thank my Pain Management and Primary Doctor, for getting me to where I am right now. Right now, I can enjoy my family. Right now, I can appreciate sitting in the living room with them and not in bed crying and secluded from them. I hope to one day turn my life around. I am in the process of fighting Social Security. I want to go back to work one day. Right now, however, I need to focus on my health. As it stands I cannot handle crowds, stress (in any amount), I get disoriented and mentally unfocused, and on top of it all, pain. This pain rears its ugly head whenever and however it wants to. Any person who suffers will agree, that this pain has a mind of its own. One day we can be "ok", and another day be bedridden from just walking to the bathroom. It is not understood why or how this happens, but it does. My blog is an outlet for me. It allows me to explain, and hopefully, give meaning to who I have become and this new life I live. As stated above, I cannot be the person I once was, but I welcome you to read along as I learn to be the new person I will become.
I have one child. My son is the most important person in my life, followed by his father. Cause if not for his father I would not have such a beautiful son. I have homeschooled my son since 2006. We both LOVE it. Being able to do school in your pajamas is a wonderful feeling. Many things that would normally be a fight are not even an issue because of the time we have. I have been able to teach him laundry on my own, and his own, time. No stress from him being at school for up to six hours then coming home and and having three more hours at night of homework. BLECH.
Homeschooling my son offers me the comfort that during my flare ups, I won't need to push myself further than my body will allow.
I started wood burning, as well as other projects, because my mind was getting bored. Not knowing what is going on with your own body and having doctor's tell you that "I wish I had knees like yours." Those don't help with the boredom because when you hear that you tell yourself, "Oh I should just get out of the house and do stuff. The pain will go away." But, as you do stuff, the pain doesn't go away, it gets WORSE. By now you feel like all hell has broken loose in your, well my, knee. I take a step and it doesn't want to support me. I take another step, because collapsing right there on the sidewalk isn't an option, and I'm done for the day. Very often have I started out feeling "good enough" only to give an hours worth of my time for the pain to build up to an intolerable level and I am back in bed again. So wood burning came into existence, and I like it. It is a nice hobby, and one that doesn't require me to go walking/running around. I have pictures in my PHOTO ALBUM , but I will post some here too.
I also tried going back to school, online only, however, the stress of school deadlines and intensity of homework due, caused many more flare ups than I could stand. So I have pulled back from the added stress and will try going back to school when I know my mind is stable and on track again.
I have one child. My son is the most important person in my life, followed by his father. Cause if not for his father I would not have such a beautiful son. I have homeschooled my son since 2006. We both LOVE it. Being able to do school in your pajamas is a wonderful feeling. Many things that would normally be a fight are not even an issue because of the time we have. I have been able to teach him laundry on my own, and his own, time. No stress from him being at school for up to six hours then coming home and and having three more hours at night of homework. BLECH.
Homeschooling my son offers me the comfort that during my flare ups, I won't need to push myself further than my body will allow.
I started wood burning, as well as other projects, because my mind was getting bored. Not knowing what is going on with your own body and having doctor's tell you that "I wish I had knees like yours." Those don't help with the boredom because when you hear that you tell yourself, "Oh I should just get out of the house and do stuff. The pain will go away." But, as you do stuff, the pain doesn't go away, it gets WORSE. By now you feel like all hell has broken loose in your, well my, knee. I take a step and it doesn't want to support me. I take another step, because collapsing right there on the sidewalk isn't an option, and I'm done for the day. Very often have I started out feeling "good enough" only to give an hours worth of my time for the pain to build up to an intolerable level and I am back in bed again. So wood burning came into existence, and I like it. It is a nice hobby, and one that doesn't require me to go walking/running around. I have pictures in my PHOTO ALBUM , but I will post some here too.
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| From Woodburning |
I also tried going back to school, online only, however, the stress of school deadlines and intensity of homework due, caused many more flare ups than I could stand. So I have pulled back from the added stress and will try going back to school when I know my mind is stable and on track again.
If you want to find me, and befriend me, I am all over the internet. Just search for me by name: christine leiendecker or by username: jesdenm
In fact, I have done the search for you. If you click above on each name you will find the google search for each item, name and username. I am open to most any and all friend requests. I will say, though, that at times, I tend to shy away from the computer as it gets too overwhelming and that right there causes a flare up. Darn this RSD/CRPS -
GIVE ME BACK MY MIND AND MY LIFE!!!